WEBSITE PRIVACY POLICY

This Privacy Policy applies to the ORCHESTRA Study Website developed and maintained by Parexel International on behalf of the study sponsor. You are responsible for carefully reading this Privacy Policy in its entirety. 

Parexel understands that privacy is important to you. The information that we collect about you from the ORCHESTRA Study Website will be maintained and used in accordance with this Privacy Policy and applicable laws, rules and regulations.

Reference to “Parexel” means Parexel International Corporation, 275 Grove Street, Newton, Massachusetts 02466 United States of America, including any company that Parexel International Corporation controls (for example, a subsidiary of Parexel International Corporation). Parexel may share information among its subsidiaries, and such information shall be protected in accordance with the terms of this Privacy Policy.

SUMMARY OF INFORMATION WE COLLECT
If you use our Website, the only information we collect will be:

  • information through the use of Cookies,
  • information collected in Web Logs or 
  • in case of the use of the “Refer a Friend” functionality, temporarily the information requested by the “Refer a Friend” form.

This ORCHESTRA Study Website offers an automated questionnaire that will help you to determine your eligibility to participate in the ORCHESTRA Study. This questionnaire does not store, or share provided information rather temporarily display the outcome of the questionnaire. Please note that You are responsible for ensuring the accuracy of the information you submit. Inaccurate information will affect the automated questionnaire results which confirm whether you may be qualified to participate in the ORCHESTRA Study.

PERSONAL DATA or PERSONALLY IDENTIFIABLE INFORMATION
Personal Data or Personally Identifiable Information is information that can be traced back to an individual. Examples of Personal Data or Personally Identifiable Information include your name, home address, telephone number, email address, date of birth, and any other information that is linked to this identifying information. 

“REFER A FRIEND” FUNCTIONALITY
This ORCHESTRA Study Website use a WordPress plugin called “Gravity forms” that allow you to share this ORCHESTRA Study Website with a friend. This form temporarily collects your contact details and the contact details of the friend for the purpose to share the ORCHESTRA Study Website with the friend. The ORCHESTRA Study Website is designed to delete this information once the information about this ORCHESTRA Study Website was sent to the recipient via clicking the Submit button.

COOKIES
We collect basic data about your use of our Website through the use of Cookies. A Cookie is a small piece of information that our server sends to your web browser when you access the ORCHESTRA Study Website. Every computer that accesses the ORCHESTRA Study Website is assigned a different Cookie. Cookies are capable of storing many types of data. Cookies may be used to help us analyze usage of the ORCHESTRA Study Website. We do not link basic data from Cookies to Personally Identifiable Information. Most browser software can be set to reject all Cookies.  Note, however, that some portions of the ORCHESTRA Study Website may not work properly if you reject Cookies. For further information, visit allaboutcookies.org

IP ADDRESSES
An IP address is a number assigned to your computer/mobile by your Internet service provider so your computer / mobile can access the Internet. Parexel only collect or store full IP address in Web Logs (please see Web Logs and Google Analytics below).

WEB LOGS
Web Logs record basic data about your visit to the ORCHESTRA Study Website, such as the date and time of the visit, the pages of the ORCHESTRA Study Website viewed during the visit and IP addresses. Web logs are not directly collected by or stored by Parexel. Web Logs for the ORCHESTRA Study Website are processed by a third party company called Names.co.uk, who host this website and are necessary for the purposes of assisting with troubleshooting user issues within the website by parsing the web server logs and displaying relevant warnings and error messages in the interface. We do not normally seek to identify individuals from Web Logs. However, Web Logs may be shared with law enforcement agencies if we believe there has been a violation of computer security or related laws. 

GOOGLE ANALYTICS
This website uses Google Analytics, a web analytics service provided by Google, Inc. (“Google”) which uses cookies to help the web team analyze how users use the site. The information generated by the cookies about your use of the website will be transmitted to and stored by Google under their privacy policies:

Google: https://support.google.com/analytics/answer/6004245?hl

Parexel utilizes IP address anonymization within Google analytics. The IP anonymization feature in analytics sets the last four digits of your IP address to zeros in memory shortly after being sent to the Analytics Collection Network. The full IP address is never written to disk in this case.  

AGGREGATE DATA 
We will combine the Google Analytics and Cookie information your visit will provide with information from other visitors to the ORCHESTRA Study Website to create Aggregate Data which does not contain any uniquely identifying information. We will share this Aggregate Data with the sponsor of the ORCHESTRA Study, and/or its consultants. We will periodically analyze this Aggregate Data and use what we learn to make improvements to the ORCHESTRA Study Website. We may also share this Aggregate Data with our partners to assist them in better designing their websites for clinical research studies.

USE AND DISCLOSURE
We will not collect, use or disclose information of users of the ORCHESTRA Study Website for any purpose other than those described in this Privacy Policy. If these uses change at any time, we will update the privacy policy on the ORCHESTRA Study Website. We only use and disclose such information the following ways:

  • SHARING INFORMATION WITH STUDY SITES
    We may forward Aggregate Data (as defined above) and /or Google analytics information to the ORCHESTRA Study site running the clinical research study of interest.  This is for the purpose of seeing how the site is discovered and navigated and is completely anonymized. For more information on how this is done, please see the Google Analytics section above.
  • AGENTS AND SERVICE PROVIDERS
    We may contract other companies and individuals to perform ORCHESTRA Study Website related maintenance functions on our behalf. They may need access to information collected via this ORCHESTRA Study Website to perform their functions.

Third parties that access IP address information may be required to disclose them to comply with a law or regulation, or in response to a search warrant, subpoena, or court order. Disclosures may also be appropriate to protect our legal rights, to protect the security or integrity of the ORCHESTRA Study Website, to take precautions against liability, or during emergencies if physical safety is believed to be at risk. These types of disclosures are unlikely to occur, but we want you to be aware that they are possible.

LINKS TO OTHER WEBSITES
The ORCHESTRA Study Website may contain links to other websites. We will inform you about this via pop-up window containing website forwarding language. Please keep in mind when you access websites operated by other parties, whether through links on our website or otherwise, that we do not control what happens on those websites. You should always check the privacy policy of the website you are visiting in order to be sure you know how the operator of that website will collect information from you and what the operator of that website will do with the information.

DATA SECURITY and INTERNET TRANSMISSION RISKS
We acknowledge that no internet transmission is ever 100% secure or error free. We maintain appropriate technical, physical, and organizational procedures to safeguard information collected via this ORCHESTRA Study Website against unauthorized or unlawful processing and/or against accidental loss, alternation, disclosure or access. It is your responsibility to ensure that the computer / mobile you use is adequately secured and protected against malicious software, trojan horses, computer viruses and worm programs. Without adequate security measures on a computer / mobile, there is a risk that the information you provide could be disclosed to unauthorized third parties. Similarly, despite Parexel’s efforts to protect your information, there is always some risk that an unauthorized third party may find a way around our security systems or that transmissions of your information over the internet may be intercepted. 

CHANGE NOTIFICATION
As privacy laws and regulations evolve, it may be necessary to revise or update our Privacy Policy without notice. You can determine if this Privacy Policy has been revised since your last visit by referring to the “last updated” legend at the bottom of this page. Your use of our website constitutes your acceptance of the terms of the revised Privacy Policy, and you should therefore review the Privacy Policy regularly to ensure that you are aware of its terms. Please print, save, and retain a copy of the Privacy Policy (and of any revised version) for your records.

ACCESS RIGHTS
To the extent collected information would allow Parexel to identify you from the collected information, Parexel will provide you on request reasonable access to such information. Subject to any legal requirements, you are given a reasonable opportunity to correct, amend or delete information that is inaccurate. You may do so by contacting the Privacy Contact as set forth below.

RETENTION OF GOOGLE ANALYTICS INFORMATION
We will only maintain Google analytics Information for as long as we are required to do so for the purpose(s) for which it is processed. 

PRIVACY CONTACT INFORMATION:
Questions or comments regarding this Privacy Policy or our practices, should be submitted to:

Parexel International

The Quays, 101-105 Oxford Road

Uxbridge, Middlesex UB8 1LZ

United Kingdom

UK_DPO@parexel.com

ADDITIONAL INFORMATION FOR INHABITANTS OF THE EUROPEAN ECONOMIC AREA
Communications, queries or requests to exercise informational rights (e.g., access to data) or complaints under the European Union General Data Protection Regulation (European Commission Regulation 2016/679 or GDPR) can also be addressed to the attention of Parexel`s EU Data Protection Officer, via mail to Parexel International GmbH, EU Data Protection Officer / Datenschutzbeauftragter, Am Bahnhof Westend 15, D-14059 Berlin, Germany, or emailed to EU_DPO@Parexel.com.

Within the European Economic Area, individuals have the right in law to complain about how their personal data is handled to a supervisory authority (data protection authority) that is responsible for regulating compliance with the GDPR. A list of all EU supervisory authorities is available on the European Commission website: 

http://ec.europa.eu/justice/data-protection/article-29/structure/data-protection-authorities/index_en.htm

RESERVATION OF RIGHTS:
Parexel reserves the right to share an individual’s information as required by law or to duly authorized information requests of government authorities.